There are moments that seem to carry a special air, as if time itself paused to mark them. In July 2023, before a notary, one such moment was written into history. Six women, with hands full of determination and hearts brimming with hope, came together to officially establish the Foundation for Fasciopathy Research. It wasn’t just an administrative act; it was the realization of a collective dream, the answer to a long-overdue need.

Their glances met with shared understanding. Six women united by a common purpose, each with her own unique journey, but with an energy that made it feel as though this path had been destined for them. At no point did we sit down and decide it should be women; it just happened. And sometimes, the best decisions are the ones that aren’t planned. This spontaneous union created a strength we still feel intensely today. We recognize that this alliance is no coincidence: it is the spirit of the foundation, the essence of a mission that demands courage, perseverance, and empathy.

A Vision for the Future: July 2029

In that moment, amidst signatures and smiles, we were already thinking of the future. July 2029. We promised ourselves that in six years, we would meet again. It won’t just be a gathering to look back but a celebration of all we will have achieved. We imagine ourselves sitting together, reviewing reports, published research, and the lives we will have touched. Perhaps that day, we’ll laugh at the fear we felt in the face of the enormity of the challenge. Perhaps we’ll feel moved thinking about how we endured the difficult moments, how we leaned on each other to keep going.

We don’t know exactly what we’ll have accomplished by 2029, but we do know one thing: the spirit that brought us together that day will carry us there. The strength, the hope, and this initial drive that launched us with such passion will be our allies. With this conviction, we are less concerned about the outcome because we know that, whatever happens, we will have already changed something important: the way fasciopathies are perceived, the way they’re talked about, and the commitment to their research.

The Patient Board: Another Unexpected Communion

As if the universe continued to show us its subtle magic, within months, we found the five women who would form the board of the Patient Association. Once again, it wasn’t a deliberate choice; it just happened. Women with stories, with a desire to fight, with a shared vision. Women who understand that together, they can be an unstoppable force. This new communion isn’t just a coincidence; it’s a sign of what we can build when passion and commitment guide us.

Conclusions: The Hope for a Future Full of Growth

Sometimes, the best stories begin like this, with unexpected encounters and a communion of souls with a shared purpose. We are at the start of a new chapter, a phase of growth, hope, and perseverance. The six women who signed that day, and the six who formed the patient board, are just the beginning of a network that will continue to grow, expand, and bear fruits we can only imagine today.

When July 2029 arrives, we will celebrate all we have achieved, all we have fought for, and the certainty that this journey, which began that day before the notary, has been worth every step.

Visit us at www.fasciopathiesresearchfoundation.org and join us on this journey of change and hope.